Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development
Date
2018-02-01Author
Levin, AdeeraJindal, Kailash
Kalantar-Zadeh , Kamyar
Lunney, Meaghan
Okpechi, Ikechi G.
Olanrewaju , Timothy Olusegun
Osman, Mohamed A.
Perl, Jeffrey
Qarni, Bilal
Rashid, Harun Ur
Rateb, Ahmed
Kazancioglu, RÜMEYZA
See , Emily J.
Alrukhaimi , Mona
Ashuntantang, Gloria E.
Bello, Aminu K.
Bellorin-Font, Ezequiel
Gharbi, Mohammed Benghanem
Rondeau, Eric
Samimi, Arian
Sikosana, Majid L. N.
Sola, Laura
Tchokhonelidze, Irma
Wiebe, Natasha
Yang, Chih-Wei
Ye, Feng
Zemchenkov, Alexander
Zhao, Ming-hui
Johnson, David W.
Braam, Branko
Feehally, John
Harris, David C.
Jha, Vivekanand
Advisor
Type
Metadata
Show full item recordAbstract
Development and planning of health care services requires robust health information systems to define the burden of disease, inform policy development, and identify opportunities to improve service provision. The global coverage of kidney disease health information systems has not been well reported, despite their potential to enhance care. As part of the Global Kidney Health Atlas, a cross-sectional survey conducted by the International Society of Nephrology, data were collected from 117 United Nations member states on the coverage and scope of kidney disease health information systems and surveillance practices. Dialysis and transplant registries were more common in high-income countries. Few countries reported having nondialysis chronic kidney disease and acute kidney injury registries. Although 62% of countries overall could estimate their prevalence of chronic kidney disease, less than 24% of low-income countries had access to the same data. Almost all countries offered chronic kidney disease testing to patients with diabetes and hypertension, but few to high-risk ethnic groups. Two-thirds of countries were unable to determine their burden of acute kidney injury. Given the substantial heterogeneity in the availability of health information systems, especially in low-income countries and across nondialysis chronic kidney disease and acute kidney injury, a global framework for prioritizing development of these systems in areas of greatest need is warranted.
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