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Availability, coverage, and scope of health information systems for kidney care across world countries and regions.

dc.contributor.authorSee, Emily J
dc.contributor.authorBello, Aminu K
dc.contributor.authorLevin, Adeera
dc.contributor.authorLunney, Meaghan
dc.contributor.authorOsman, Mohamed A
dc.contributor.authorYe, Feng
dc.contributor.authorAshuntantang, Gloria E
dc.contributor.authorBellorin-Font, Ezequiel
dc.contributor.authorBenghanem Gharbi, Mohammed
dc.contributor.authorDavison, Sara
dc.contributor.authorGhnaimat, Mohammad
dc.contributor.authorHarden, Paul
dc.contributor.authorHtay, Htay
dc.contributor.authorJha, Vivekanand
dc.contributor.authorKalantar-Zadeh, Kamyar
dc.contributor.authorKerr, Peter G
dc.contributor.authorKlarenbach, Scott
dc.contributor.authorKovesdy, Csaba P
dc.contributor.authorLuyckx, Valerie
dc.contributor.authorNeuen, Brendon
dc.contributor.authorO'Donoghue, Donal
dc.contributor.authorOssareh, Shahrzad
dc.contributor.authorPerl, Jeffrey
dc.contributor.authorRashid, Harun Ur
dc.contributor.authorRondeau, Eric
dc.contributor.authorSyed, Saad
dc.contributor.authorSola, Laura
dc.contributor.authorTchokhonelidze, Irma
dc.contributor.authorTesar, Vladimir
dc.contributor.authorTungsanga, Kriang
dc.contributor.authorKazancioglu, Rümeyza
dc.contributor.authorWang, Angela Yee-Moon
dc.contributor.authorYang, Chih-Wei
dc.contributor.authorZemchenkov, Alexander
dc.contributor.authorZhao, Ming-Hui
dc.contributor.authorJager, Kitty J
dc.contributor.authorCaskey, Fergus
dc.contributor.authorPerkovic, Vlado
dc.contributor.authorJindal, Kailash K
dc.contributor.authorOkpechi, Ikechi G
dc.contributor.authorTonelli, Marcello
dc.contributor.authorFeehally, John
dc.contributor.authorHarris, David C
dc.contributor.authorJohnson, David W
dc.contributor.institutionauthorKAZANCIOĞLU, RÜMEYZA
dc.date.accessioned2020-12-23T20:59:09Z
dc.date.available2020-12-23T20:59:09Z
dc.date.issued2020-12-22T00:00:00Z
dc.description.abstractBackground. Health information systems (HIS) are fundamental tools for the surveillance of health services, estimation of disease burden and prioritization of health resources. Several gaps in the availability of HIS for kidney disease were highlighted by the first iteration of the Global Kidney Health Atlas. Methods. As part of its second iteration, the International Society of Nephrology conducted a cross-sectional global survey between July and October 2018 to explore the coverage and scope of HIS for kidney disease, with a focus on kidney replacement therapy (KRT). Results. Out of a total of 182 invited countries, 154 countries responded to questions on HIS (85% response rate). KRT registries were available in almost all high-income countries, but few low-income countries, while registries for non-dialysis chronic kidney disease (CKD) or acute kidney injury (AKI) were rare. Registries in high-income countries tended to be national, in contrast to registries in low-income countries, which often operated at local or regional levels. Although cause of end-stage kidney disease, modality of KRT and source of kidney transplant donors were frequently reported, few countries collected data on patient-reported outcome measures and only half of low-income countries recorded process-based measures. Almost no countries had programs to detect AKI and practices to identify CKD-targeted individuals with diabetes, hypertension and cardiovascular disease, rather than members of high-risk ethnic groups. Conclusions. These findings confirm significant heterogeneity in the global availability of HIS for kidney disease and highlight important gaps in their coverage and scope, especially in low-income countries and across the domains of AKI, non-dialysis CKD, patient-reported outcomes, process-based measures and quality indicators for KRT service delivery.
dc.identifier.citationSee E. J. , Bello A. K. , Levin A., Lunney M., Osman M. A. , Ye F., Ashuntantang G. E. , Bellorin-Font E., Benghanem Gharbi M., Davison S., et al., -Availability, coverage, and scope of health information systems for kidney care across world countries and regions.-, Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association, 2020
dc.identifier.doi10.1093/ndt/gfaa343
dc.identifier.pubmed33351951
dc.identifier.scopus85111400892
dc.identifier.urihttp://hdl.handle.net/20.500.12645/27800
dc.identifier.wosWOS:000743609700021
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectChronic kidney disease
dc.subjectend-stage kidney disease
dc.subjecthealth information systems
dc.subjectkidney replacement therapy
dc.subjectregistries
dc.titleAvailability, coverage, and scope of health information systems for kidney care across world countries and regions.
dc.typeArticle
dspace.entity.typePublication
local.avesis.id4a645692-9c77-4e2d-89f3-1b470147da64
local.publication.isinternational1
relation.isAuthorOfPublicationeca7bd30-6b6e-444d-96ae-2961c39f2107
relation.isAuthorOfPublication.latestForDiscoveryeca7bd30-6b6e-444d-96ae-2961c39f2107
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