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YURDAKUL, OZAN VOLKAN

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OZAN VOLKAN
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YURDAKUL
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Subject: autoinflammatory diseases ×

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    PublicationOpen Access
    Familial Mediterranean fever: Health-related quality of life and associated variables in a national cohort
    (2021-06-01T00:00:00Z) Bodur, Hatice; Yurdakul, Fatma Gul; DURUÖZ, MEHMET TUNCAY; Cay, Hasan Fatih; Ucar, Ulku; KESKİN, Yaşar; Sargin, Betul; GÜRER, GÜLCAN; YURDAKUL, Ozan Volkan; ÇALIŞ, MUSTAFA; DEVECİ, HÜLYA; Aydin, Yildiray; HİZMETLİ, SAMİ; ÇEVİK, REMZİ; KARAHAN, ALİ YAVUZ; Ataman, Sebnem; Ecesoy, Hilal; GÜNENDİ, ZAFER; Toprak, Murat; Sen, Nesrin; ALTINTAŞ, Duygu; Cengiz, Ahmet Kivanc; ÇAĞLAYAN, GÖKHAN; Demir, Ali Nail; Kaplan, Huseyin; Ketenci, Sertac; Melikoglu, Meltem Alkan; Nayimoglu, Mehmet; Nas, Kemal; Sarifakioglu, Banu; SEZER, İLHAN; KESKİN, YAŞAR; YURDAKUL, OZAN VOLKAN
    Objectives: This study aims to evaluate the effectivity of Familial Mediterranean Fever Quality of Life (FMF-QoL) Scale for the measurement of QoL in patients with FMF and to perform correlations between related clinical variables in Turkish patients. Patients and methods: This multicenter prospective study performed between December 2017 and November 2018 included 974 FMF patients (334 males, 640 females; median age: 35; range, 26 to 45 years). Sociodemographic characteristics and clinical features were recorded. All participants were asked to complete the FMF-QoL Scale, Short Form-36 (SF-36), Hospital Anxiety and Depression Scale (HADS), Health Assessment Questionnaire (HAQ), and Functional Assessment of Chronic Illness Therapy (FACIT) Scale. Results: The median FMF-QoL Scale score was 26. Higher FMF-QoL Scale scores were shown to be related to female sex, illiteracy or primary education, monthly low-income (US$<300), smoking, late-onset FMF (>20 years), a higher number of attacks per month (>1/month), and severe disease. FMF-QoL Scale scores were correlated negatively with subscales of SF-36, and positively with HADS-anxiety and HADS-depression scores, HAQ and FACIT. Conclusion: Female sex, smoking, lower educational status, more severe disease, fatigue, and functional impairment were associated with poor QoL. FMF-QoL Scale was noted as a valid and simple patient-reported outcome instrument and correlated with the SF-36 scale.